The Limits of Power and Advocacy with Rare Disease Parents (and one of them is the CEO of Regeneron)

Most people know Dr. Leonard Schleifer as the CEO of Regeneron, one of the world’s largest biotech companies. But he is also the father of a child with a rare disease. Dr. Schleifer and his wife Harriet know the challenges of navigating an uncertain regulatory environment. They talk about the challenges even the most connected advocates face, and what’s needed to overcome hurdles to advance the science the rare disease community needs.